Discover resources that provide educational information and practical tips about caring for your loved one with Lennox-Gastaut syndrome (LGS).
LGS and Epilepsy
DOCTOR DISCUSSION GUIDE
Treating LGS can sometimes be difficult and frustrating, especially when you’ve tried multiple therapies with varying outcomes. However, knowing what information to give your doctor and what questions to ask can help your healthcare team continue to explore the best options for your loved one. This guide can help you prepare for your loved one’s next doctor appointment.
ASK FOR ONFI BY NAME
Generic versions of clobazam have become available. If you prefer to continue taking brand-name ONFI, use this guide to help you start the conversation with your doctor about staying on ONFI if he or she thinks it is clinically appropriate for you.
ONFI DOSING SCHEDULE
Use this monthly dosing chart to help you stay on track.
THE EPILEPSY FOUNDATION
The Epilepsy Foundation’s mission is to stop seizures and sudden unexpected death in epilepsy, or SUDEP; to find a cure; and to overcome the challenges created by epilepsy through education, advocacy, and research.
THE LGS FOUNDATION
This nonprofit organization is dedicated to providing information about LGS while raising funds to pursue research, services, and programs for people living with LGS and their families.