Studio E: The Epilepsy Art Therapy Program
People with epilepsy can participate in art therapy sessions with licensed art therapists through Studio E, Lundbeck's newest program offered in partnership with local Epilepsy Foundation affiliates in 21 cities across the US.
Family Caregiver Alliance
Find tips sheets, join a caregiver discussion group, use the Family Care NavigatorSM to find state-by-state help for family caregivers, and more from this community-based nonprofit organization dedicated to the needs of families and friends providing long-term care at home.
Locate a chapter near you of The Arc, the largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families for more than 60 years. The Arc provides individual advocacy, programs, services, and support. Services vary by chapter but may include direct services such as case coordination, special needs trust planning, transition planning, or respite care. To expand your network of LGS families, connect with others by joining an online community, reading and posting on a blog, or being part of an online discussion.
National Adult Day Services Association (NADSA)
Understand the different types of adult day centers, and get suggestions on choosing the right adult day care center for your loved one from the National Adult Day Services Association.
Caregiver Action Network (CAN)
Find information, peer support, and resources for families through the Caregiver Action Network (CAN), formerly the National Family Caregivers Association. CAN is the nation's leading family caregiver organization working to improve the quality of life for the more than 65 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age.
Social Security Administration
Read this booklet for parents, caregivers, or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments. It will also inform adults who became disabled in childhood and who might be entitled to Social Security Disability Insurance (SSDI) benefits.
American Medical Association (AMA)
Take this brief, free Caregiver Health Assessment Questionnaire called "How Are You?" developed by the American Medical Association. Completing this quiz and sharing it with your personal doctor as well as your loved one's healthcare team can help you get needed help in managing the stress of caring for patients with chronic conditions.
American Psychological Association (APA)
Complete the Coping Health Inventory for Parents (CHIP), a 45-item tool to measure a parent's response to managing coping behavior during a time when a child has a serious or chronic medical condition. Share your answers, which range from "not helpful" to "extremely helpful," with your personal doctor or your loved one's healthcare team as a way to talk about support that you or your family may need.
Agency for Healthcare Research and Quality (AHRQ)
Be proactive and prepared by asking "The 10 Questions You Should Know," created by the US Department of Health & Human Services AHRQ and available on this site to help build strong healthcare teams. View videos of doctors and nurses talking about how asking these simple questions lets them take better care of patients like you and your loved one. Patient videos describe how asking these questions lets patients be active members of their healthcare team and prepares them to take better care of themselves too.